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PANDEMIC ALERT LEVEL
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Online Discussion: Tracking new emerging diseases and the next pandemic since 2005; Coronavirus COVID-19 Pandemic Discussion Forum.

A Must Read

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Tabitha111 View Drop Down
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    Posted: May 10 2020 at 2:44pm

As told to Eli Saslow, May 9 2020-by Darlene Krawetz , Syracuse, N.Y., 

About this series

Voices of the Pandemic is an oral history of covid-19 and those affected.


.......................
I’ve hardly moved from this couch in weeks, but right now my heart rate monitor says I’m at 132. That’s double my normal. That’s like if I’m climbing a mountain. How come? Nobody knows. Nobody ever knows. And why has my fever been spiking again? Do I need to go back to the ER? I’m on week six of this crap, and I still don’t know if I’m getting better or worse, but people want to act like the threat is behind us?



Wait, no, that’s not right. This is actually week eight for me. I started getting symptoms right before New York shut down. I mix up my dates. My mind is all foggy. I’ve been a nurse for 30 years, and now I can’t even remember if my last Tylenol was five minutes or five hours ago. It feels like electricity is burning through my spine, and nobody can tell me why. It’s like I’m sucking air through a straw. When I stand up, my ears start ringing until dizziness forces me back down. Every symptom is a whole new mystery. This virus is unpredictable and so, so violent.


I’m up to 140 now. See? It’s relentless. How long can a heart last like this? The palpitations come a few times every hour and go on for a minute or more. It’s just banging, banging, banging, banging.


It hurts too much to talk. I’ll try again later. I have to lie down and breathe through it. That’s what they tell me to do.


* * *


The next morning, Wednesday, May 6


My heart rate is back down now to 105. That’s nothing to celebrate. That’s still considered abnormal, but it’s typical now for me.


I didn’t use to be like this. I’m healthy. I’m a vegetarian. I’m only 52. I’ve got grown kids in the military and a teenager at home, and we hike and kayak. I’m a positive, hard-charging person. Maybe I got it at the VA hospital where I work, but we didn’t have any confirmed cases yet. Or my son might have had an exposure and given it to me. Who knows? It’s one more mystery. I didn’t even notice I was sick until another nurse asked why I was coughing. I figured it was allergies. Take some Zyrtec and get on with it. Hardly anybody here in Syracuse had covid at that point. What were the odds?



Then, after I tested positive, I thought I’d get a mild case. I told my husband: “Relax. I’m fine.” I don’t have diabetes. I don’t have hypertension, COPD or anything like that. I thought I could stay home, take care of myself and be back at work in a few weeks.


Right away I started running a temperature of 103, and the Tylenol couldn’t control it. I was shaking and cursing all day in bed, and the symptoms spread from there. I was head-to-toe exhausted. I wanted the whole world to let me alone. I had equipment at home from my nursing work, and I started checking my vitals and saw my blood pressure shooting up. I’ve never had that. I’d get up to shower and start gasping for air. My son was also covid-positive, and he ran a high fever and recovered within a week while I kept on getting worse. Maybe because I’m older? Or because I used to be a smoker? You can’t get a definitive answer on anything with this. I started coughing to the point of throwing up. I coughed until I was incontinent. My lips were chapped from dehydration. I had headaches. Migraines. Heartburn. Rashes. I lost 16 pounds in the first few weeks. I would lie down at night after taking melatonin and Benadryl, soaked in sweat and terrified of what might be coming next. What if I fall asleep and stop breathing? More Benadryl. More melatonin. Maybe try a Xanax. I’d lie there for hours but it was nonstop insomnia. I’d turn the TV to Lifetime for a distraction, but I couldn’t make sense of what they were saying.


One day, my son needed money to buy groceries. I said I’d give him $80, but I couldn’t count it out. I couldn’t do the math. I handed him $50, then $70. I asked him: “Is this really happening right now or is this a hallucination?” He took the cash and counted it himself. He begged me to get help.


I went to urgent care. The X-rays showed pneumonia, so they told me to go to the ER. I didn’t want to risk a secondary infection at the hospital, and I knew they didn’t have any magic treatment for this virus, but I couldn’t take care of myself. There wasn’t any choice. I wrote down my end-of-life wishes, and I had my son drop me at the ER.


I’m having another palpitation. Hang on. Are these panic attacks? I never had them before. It feels like my heart is trying to jump out of my chest.


Breathe. Stay calm. What is there to be calm about? It’s up over 150 now. Something is really wrong with me. I need to go rest. I need to figure this out.


* * *


A few hours later


Okay. I’m a little better. It’s hour by hour. I’m not sure I can handle it again if I have to go back to the hospital. That first stay lasted 10 days, or at least that’s what they told me. I couldn’t tell days apart. I had a little glass isolation room with a curtain they kept closed. There was nothing to see out the window except a parking garage across the street. I couldn’t have visitors, and most of the doctors and nurses were afraid to stay in the room. It was okay. I was too sick to talk and too scared to feel lonely. I appreciate what they did. They were honest about what they didn’t know, and they tried. They kept throwing stuff at the wall to see what might stick.


They gave me a malaria drug, but it did absolutely nothing. They gave me an antibiotic for pneumonia, but I still couldn’t breathe without 15 liters of oxygen. They tried vitamin C, magnesium, shots of blood thinner, baby aspirin, Tums, multivitamins, Xanax, cough syrup with codeine. It was like fixing a car when you don’t know what’s broken. They gave me inhalers and breathing exercises to do every hour, but my oxygen level kept dropping. They wanted to put me on life support, but I was afraid I’d never come off. The doctor came in and said: “We have a team ready to revive you in case you start to code. We’re going to watch you closely.” Watching was all anybody could do. Then, one morning, my fever started to go down. Nobody knew why that happened either. But it stayed down for 36 hours, and they said I could go home.



Now I’ve got my oxygen on a long extension cord. I can make it to the kitchen or the bathroom if I’m feeling good, but usually I stay here in the den. My husband never caught it, so we’re staying apart. He works as a manager at Wegmans, and if he got sick, we might be out on the street. The $1,200 stimulus went to rent and hospital co-pays, and now we’re burning through our savings. I try not to think about it. I watch the news and check my vitals, but they’re always bad. My family stands in the doorway to visit sometimes, and other people text or call. “Are you feeling better yet?” It’s like they’re becoming impatient. They want to feel safe going out. We managed to buckle down for a while, but now it’s getting nice outside, and people need to work. The deniers and the protesters are coming out. One of my relatives went on Facebook and wrote that this whole virus is overblown, or maybe even a hoax. People want to minimize.


“Are you better yet? Why aren’t you better yet?”


I don’t know. I don’t know anything. My brain keeps racing with unanswered questions. Are my lungs scarred? Is my heart damaged? Can I get sick again? Will I be hiking the Adirondacks this summer or lugging this oxygen tank from the den to the bathroom for the rest of my life?


I hate this virus. It’s been two months of uncertainty and I don’t think I can take any more. Why are my legs burning? Why is my skin so hot? I need answers. I need help.


* * *



The next morning, Thursday, May 7


I’m back at the hospital.


My fever won’t come down. The doctors say I have blood clots on my lungs and a mass on one of my organs. They’re trying to figure it out. There’s no timeline and no prognosis. All I know is they’re admitting me. I’ve been crying my eyes out. The morphine is making me in a fog. When will this damn thing let me alone?


https://www.washingtonpost.com/nation/2020/05/09/seven-weeks-with-coronavirus/?arc404=true&pwapi_token=eyJ0eXAiOiJKV1QiLCJhbGciOiJIUzI1NiJ9.eyJjb29raWVuYW1lIjoid3BfY3J0aWQiLCJpc3MiOiJDYXJ0YSIsImNvb2tpZXZhbHVlIjoiNTk2ZWZkOGJhZGU0ZTI1ZTAyOTRmNDUyIiwidGFnIjoid3BfdG9feW91cl9oZWFsdGgiLCJ1cmwiOiJodHRwczovL3d3dy53YXNoaW5ndG9ucG9zdC5jb20vbmF0aW9uLzIwMjAvMDUvMDkvc2V2ZW4td2Vla3Mtd2l0aC1jb3JvbmF2aXJ1cy8_YXJjNDA0PXRydWUmdXRtX2NhbXBhaWduPXdwX3RvX3lvdXJfaGVhbHRoJnV0bV9tZWRpdW09ZW1haWwmdXRtX3NvdXJjZT1uZXdzbGV0dGVyJndwaXNyYz1ubF90eWgmd3Btaz0xIn0.Eyx60Gzp0OIBr1AfFCBKBN-5dFDmqiNhv_RbbDuQZ1c&utm_campaign=wp_to_your_health&utm_medium=email&utm_source=newsletter&wpisrc=nl_tyh&wpmk=1

'When you feel as though you can't do something, the simple antidote is action: Begin doing it. Start the process, even if it's just a simple step, and don't stop at the beginning.'
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Post Options Post Options   Thanks (0) Thanks(0)   Quote FluMom Quote  Post ReplyReply Direct Link To This Post Posted: May 10 2020 at 3:07pm

Well this lady has it bad and why no one will know at this point why she is worse than her son or others her age.  Was she low on Vitamin D like the Northwestern Study states.   

I know this crap can be bad for some but do we close our whole society for the few that get really bad?  That is why I stay at home sanitize or wait to open anything that comes into my house.  I know because I am old to stay home this woman did not know she would get so sick so younger people will have to throw the dice on if to go out or not.  Life is hard and it is about to get harder!  

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Post Options Post Options   Thanks (1) Thanks(1)   Quote BeachMama Quote  Post ReplyReply Direct Link To This Post Posted: May 10 2020 at 4:15pm

It is the pure randomness of this virus that is terrifying. You don’t know if you’ll be one of the people who is asymptomatic, one who gets a little sick, one who barely scrapes by or one who dies. And if you make it, what then? As this lady sharing her experience notes, we don’t know the long-term effects of this virus. Scarring of the lungs? Worse? We don’t know.

The article is poignant. Thank you for posting it. 

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Post Options Post Options   Thanks (1) Thanks(1)   Quote KiwiMum Quote  Post ReplyReply Direct Link To This Post Posted: May 10 2020 at 6:30pm

Very recent research is showing that even so called mild cases can leave the body with disabling after effects. I was reading of a 48 year old woman in the UK who had it, but not badly enough to go to hospital. She thought she had recovered but didn't feel right, and now she's discovered that it has damaged her heart so badly she's been left with a potentially fatal heart problem that she will likely have for the rest of her life. 

The danger of letting it run unfettered through a country like the UK or the US is that we don't know enough about it yet, and as a doctor in the UK said in the article i read, it may well leave survivors in a catagory of society labelled "Covid 19 disabled" much like Polio did in the 50's, and there are still older people around today who are suffering from having had Polio as a child. 

You can't fix stupid.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote FluMom Quote  Post ReplyReply Direct Link To This Post Posted: May 10 2020 at 6:50pm

We are all going to get this virus so the U.S. or the U.K. have to reopen.  Kiwi you are your family are self sufficient living on a farm but people here in the U.S. and U.K. live in cities or burbs of cities and they work at jobs in companies.  They have to pay rent/mortgage, food , car payment, property taxes, and utilities.  NO WORK NO MONEY!  People have worked and lived and died during other pandemics and this one will be no different.  Some of us like me are lucky to not have to work at this time but people like me are few and far between.    My son has to work and go to school, I can't pay his bills and mine.  So I know he is taking his life in his hands but I understand.  I have put him and his girlfriend on Vitamin D and B6 and hope it helps them if they get Covid.  I have Chloroquine if he gets it and have his medical power of attorney and would get my/his doc to tell us how much to give and get a zpack for him...I have zink to give him too.

All we can do is do our best and pray about living through this!  

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